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She swooped in front of me and directed me to follow her. gas and water mix I pushed the joystick on my midnight blue Invacare and rolled after Ellie to a restaurant with an orange neon sign outside that said “Master Wok.” Inside, there was a black and silver buffet table filled with steaming food, behind which stood several chefs wearing white uniforms and hair nets and clutching silver serving spoons.

I noticed an attractive young lady with long brown hair neatly arranged in a bun seated at one of the tables. I watched as Ellie slowly inched her chair up to the table where the young woman was eating a plate of fried chicken wings. I learned the young woman’s name was Ashley. At first, I thought she and Ellie were friends, but then I heard Ashley call Ellie “mom.”

Ellie was a regular at New York–Presbyterian Hospital—kidney stones a few years ago, pneumonia a couple of times, traction for a badly broken leg for a month. I went with her once when she was being fitted for her new chest shell. gas in babies Ellie used a white ceramic Cuirass shell that went from her neck to her hips for sleeping. It had a gray flexible hose midway for breathing and a pump at her waist that helped expand and contract her chest. “This girl’s a trooper!” I always said. She was certainly my heroine.

I remember the early days of our relationship, when she lived on Jerome Street in Brooklyn, we were just happy to have each other. gas city indiana restaurants Looking back, I realize how fragile our time together really was. I told myself, “You’re lucky to have her, savor every moment you have together.” Neither of us was very healthy. Knowing this, we rarely wasted time together. Instead, we would find something to do. It really didn’t matter where it was, as long as we were together.

Ellie was a tireless advocate, always ready to speak up for the disabled. She was a board member along with me at Disabled in Action (DIA). j gastroenterology impact factor She was also on the advisory board at Concepts of Independence, an organization that supports consumer-directed personal assistance for people with disabilities. Ellie did volunteer work at Concepts also.

Besides her Cuirass shell, Ellie also used oxygen and a respirator to help her breathe at night. On the hot night of July 29, at 5:00 in the morning, Starret City, which had its own power system, experienced another in a series of blackouts residents had complained about for years. electricity fallout 4 This one lasted five hours. Ellie’s electric respiratory support system stopped working and she lost consciousness. Ashley tried to revive her mom while she waited for paramedics from the New York Fire Department to respond to her 911 call. Ellie died before they arrived. She was 57 years old.

William “Bill” Clarke is a disability rights advocate and ICS member who lives in Brooklyn. Tags: Access-A-Ride, Activist, Brooklyn, Civics League for Disability Rights, Concepts of Independence, DIA, disabilities, disability, disability activists, disability rights, disability rights activist, disability rights activists, Disabled in Action, Disabled in Action DIA, Elizabeth Ramos, home attendants, ICS, ICS Member, ICS Member Elizabeth Ramos, ICS Members, Independence Care System, Invacare, New York City, Presbyterian Hospital, Starret City, wheelchair, William Clarke