Gofundme should stop promoting unproven treatments, research – stat gas apple pay

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Medical crowdfunding, a large and rapidly growing practice dominated by the website GoFundMe, can be a lifesaver for people who find themselves electricity lab physics unable to access cancer treatments, surgery, or other essential medical services due to gaps in insurance coverage or the failure of public institutions to meet their needs. But it is also helping raise funds for scientifically unproven and potentially dangerous medical treatments that are often packaged as legitimate clinical research and trials. Instead of trying to put a stop to these shady practices, GoFundMe is actually promoting them.

Although crowdfunding is a flawed solution to lack of access to health care, GoFundMe correctly sees the use of its services as a response to real and devastating health system failures, especially in the gas prices going up june 2016 U.S. Some individuals use this platform to access legitimate medical services. But others use donations to pay for unproven and largely ineffective treatments such as homeopathy and stem cell injections.

Last year, two colleagues and I reported in the Journal of the American Medical Association that we identified more than 400 crowdfunding campaigns (almost 90 percent of them on GoFundMe) seeking donations for stem cell interventions. A different trio of researchers identified more than 1,000 crowdfunding campaigns (98 percent of them on GoFundMe) for five poorly supported or potentially dangerous treatments: homeopathy or naturopathy for cancer, hyperbaric oxygen therapy for brain injury, stem cell therapy for brain or spinal cord injury o goshi judo, and long-term antibiotic therapy for so-called chronic Lyme disease.

GoFundMe is aware of this problem and could take actions to better educate its users about unproven treatments and prohibit the most dangerous and misleading campaigns. Instead it is taking a “buyer beware” position. In a statement, the company suggested that it is “not our place to tell [donors] what decision to make” and that campaigners need to “fully research whatever it is they are raising money for and to be absolutely transparent on their GoFundMe page, so donors can make an informed decision on what they’re donating to.”

GoFundMe recently sought to position itself not only as a solution to genuine health system failures, but also as a solution to those that don’t exist. In a recent interview with Kaiser Health News, GoFundMe CEO Rob Solomon said, “A lot of insurance doesn’t cover clinical trials and research and things like that, where people need access to leading-edge potential treatments. We strive to fill these gaps until the institutions that are supposed to handle this handle it properly.”

Increasing funding for research and patient participation in clinical trials is a desirable enterprise, but using crowdfunding to do it is incredibly gas 2 chainz problematic. “Regular” crowdfunding widens inequities in access to care by giving the greatest benefits to those gsa 2016 catalog with strong social networks, media contacts, and tech savvy. Crowdfunding for experimental medicine will replicate these problems for those seeking access to clinical trials.

Moreover, research on crowdfunding for unproven medical treatments has shown that many businesses recognize crowdfunding for the massive revenue stream it is, directing their customers to crowdfund unproven treatments that health systems and insurers — rightly — will not pay for. This will likely happen in the realm of more legitimate experimental medicine and clinical trials as well, especially given the new Right to Try Act signed into law in the U.S. in 2018.

For example, BrainStorm Cell Therapeutics announced in the summer of 2018 that it would make access to its experimental stem cell treatment for ALS available through “right to try.” After public outcry that this company was considering charging customers $300,000 to exercise this right, BrainStorm’s CEO changed course, citing a failure to “identify electricity production a practical funding solution” for those unable to afford their product.

It doesn’t take a great deal of imagination to see that companies will embrace Solomon’s vision and see crowdfunding as a “practical funding solution” to making their products available through right to try or by evoking such a right without actually using expanded access programs. While BrainStorm, to its credit, chose not to go down this path, crowdfunding campaigns are currently actively raising money to pay for participation in the company’s clinical trial. Thousands of other crowdfunding campaigns are actively seeking funds gas variables pogil answers extension questions for desperately ill recipients to participate in clinical trials, exercise their rights to try, and purchase “experimental” treatments.

I find Solomon’s approach of treating crowdfunding for unproven treatments as a feature of medical crowdfunding rather than a failure of it as deeply problematic. While there are undoubtedly legitimate clinical trials that would benefit from patients who responsibly use crowdfunding to raise money to participate, research I conducted with my colleague Leigh Turner shows that this is the exception rather than the rule.

Crowdfunding creates an opportunity for unscrupulous businesses to sell their products to a wider audience under the guise of experimentation, research, and clinical trials. At the same time, the majority of crowdfunding campaigners misrepresent and exaggerate the effectiveness and safety of the treatments they hope to pursue, spurred on by the need to convince donors that their money will be effective in drastically improving the campaigner’s health.

GoFundMe needs to do better electricity out in one room to prevent its platform from being used to raise money for unproven and dangerous medical treatments, mislead donors and other members of the public, and steer people away from proven treatments. Without such campaigns, this money doesn’t get raised, this misinformation isn’t spread, and people aren’t steered away from effective treatments and palliative care. Simply put, these harms don’t happen. By enabling them, GoFundMe is complicit in these harms.

If GoFundMe won’t address this problem on its own, the government should do it for the company. This could take the electricity physics problems form of GoFundMe being held responsible for allowing and encouraging individuals to make false claims about medical products. Just as the Federal Trade Commission is increasingly warning stem cell clinics to stop deceptive advertising, and the FDA is warning clinics to stop marketing stem cell therapies without FDA approval, GoFundMe could be held responsible for knowingly allowing its platform to be used to parrot and exaggerate false claims for unproven therapies.

Crowdfunding is undeniably being used to finance and promote businesses selling unproven medical treatments under the guise electricity kwh cost of experimental medicine and mislead the public about their safety and efficacy. This involves thousands of recipients, tens of thousands of donors, and hundreds of thousands of people on social media. GoFundMe needs to stop being complicit, and even glorying in this problem, and help solve it.