Mri scan of lumber spine came back ‘normal.’ why – back pain forum – ehealthforum electricity physics

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Thanks for your advice everyone, and thank you Golf11 for mentioning ankylosing spondylitis to me- you are the third person that has done now and I am 99% sure that this is exactly that I have. My symptoms started in my pre-teens and it all began with knee trouble which gradually spread to my lower back, now I have it in my neck and shoulders and thighs too. I had x-rays when I was younger but they never found anything- now it makes sense because it doesn’t show up until the later stages of the disease. The past month has been a total nightmare- I now get a fever and night sweats with the pain. I am at my whit’s end and I really hope that the orthopaedic practitioner that I am seeing in a couple of weeks will listen to me and finally be able to give me a sound diagnoses. It would be virtually impossible for me not to have this condidition because I literally fit the entire criteria. Do you mind telling me how exactly you got diagnosed? I read online that many people who have the condition don’t have the gene HLA527 and also many people who do have the gene do not have AS.

I have had knee pain since the age of 7. I started experiencing pain in my neck and sciatic nerve in my late 20s. I now live with sciatic type pain when I sit down or when I lie – it keeps me tossing and turning at night. It has been in my right leg for 23 years, and in my left leg for the last year or so. I also frequently wake up so stiff all over that I can hardly peel myself off the mattress. I also get a lot of aches in the sides of my ribs – more so at night, and I have small spots of pain in the front of my ribs which I am told is costochondritis. In the last eight months I have started having sharp pains in my left thigh – mostly when I sit. Although the pain is fairly constant, I get flare ups where it all gets worse, and then my heels and achilles tendons start to ache, as well as my coccyx. About a year ago I went to a rheumatologist. Based on an x-ray she said I had 3rd stage sacro-ileitis and sent me for an MRI which she said was the gold standard for AS. The MRI came back negative so she said there was nothing wrong with me and sent me away. She could not explain the discrepancy between the MRI and the x-ray but said the x-ray was wrong. She basically seemed to think I had fabricated all the pain because she could not find the cause. My ESR and CRP tests are negative, as is my blood marker for AS. So where to from here? I would be so grateful if you have any suggestions. By the way, my Dad had AS.

please could anyone give me some advice…i am insulin dependant diabetic and had my 3rd child 18 months ago. during my pregnancy i was diagnosed with spd and pgp (symphasis pelvis dysfunction and pelvic girdle pain). iv been to see a rheumatologist and was told i had sciatica and then no further appointments. for almost 2 years now iv had constant 24/7 pain in my illiac (lower spine im told) bone, pelvis pain, hip pain, knee pain, my joints crack all the time. i can walk a few steps then end up in major pain that i go slower until pains too much. i get hand and foot spasms, blurred vision and cramp that feels like its in my bones. i go to physio weekly and have just had an mri scan. went for my results today and dr was pretty nasty telling me theres nothing wrong with me and it will all just go one day! wont perscribe any pain relief as says cos mri showed nothing wrong with my spine that i dont need anything. i dont know wat to do next, im crying in pain daily and just cant cope anymore. if the scan shows nothing then why am i in so much pain x

please could anyone give me some advice…i am insulin dependant diabetic and had my 3rd child 18 months ago. during my pregnancy i was diagnosed with spd and pgp (symphasis pelvis dysfunction and pelvic girdle pain). iv been to see a rheumatologist and was told i had sciatica and then no further appointments. for almost 2 years now iv had constant 24/7 pain in my illiac (lower spine im told) bone, pelvis pain, hip pain, knee pain, my joints crack all the time. i can walk a few steps then end up in major pain that i go slower until pains too much. i get hand and foot spasms, blurred vision and cramp that feels like its in my bones. i go to physio weekly and have just had an mri scan. went for my results today and dr was pretty nasty telling me theres nothing wrong with me and it will all just go one day! wont perscribe any pain relief as says cos mri showed nothing wrong with my spine that i dont need anything. i dont know wat to do next, im crying in pain daily and just cant cope anymore. if the scan shows nothing then why am i in so much pain x

UUuuummm – I found this site by sheer luck and reading through the posts and replies this has left me with my lower jaw hanging on my knees…..this has been a revelation through dealing with well meaning Doctors – Neurologists – Neurosurgeons – Pain Management clinics – Physiotherapy not to mention X/ray’s – CT scans with contrast and 5 MRI’s – 1 with contrast and two seperate investigations with EMG Nerve conductivity tests – Full blood tests the list seems endless all to be told at the end of all this that they can see nothing on the MRI’s as to why I have pain.

MRI results include; T10/T11 High Focal point – L2/L3 Annular tear, prolapsed disc – Osteophytes. L3/L4 Herniated broad based prolapsed disc – L2 Heamangioma – L4/L5 Herniated disc – L5/S1 Lumberisation of S1 – Ankylosing Spondilitis – Loss of bladder control with Feacal incontinence – Detrusor instability…Saddle numbness – Left leg and foot numbness/weak/muscle with wasting (3") Right leg and foot numbness to upper calf area – trunk numbness ascending to level T4 – Spinal degeneration to the whole of the Lumbar/Thoracic/Cervical spine….and yet I am given the result that there is nothing on the MRI that would indicate the pain I am suffering….Meds include CoCodamol with Paracetamol and Oramorph morphine Sulphate – Pain is 24/7 at least 8 or 9 on a 1 to 10 scale and walking is non existant.

Cheers rollar64 and thank you for the explanation – I will be checking out Remicade, it would appear the problem simply boils down to pain and it’s severity for with constant chronic pain – mobility is reduced so you would think in order to increase mobility some form of adequate pain relief along with Physiotherapy would be the answer – alas – I have attended pain clinics and tried all the usual meds to no avail – Physiotherapy gave me simple stretching exercises but said there was nothing much else they could do, I still do these exercises on a daily basis.

The MRI’s have all indicated multi levels of spinal problems and yet the Neurologist/s all say they cannot see any reason for pain – this is so disconcerting and takes things to a new level of concern….it just leaves you bewildered and at a total loss to understand what is happening – without a difinitive diagnosis I can only answer that there is nothing wrong with me when asked by other professional health practitioners.

One question I have never had answered properly is: What is an "High Focal Point at T10/T11" – One Doc said it’s when the discs have collapsed onto each other and another Doc simply said – Oh thats nothing at all, I’m not bothered about that.